I have always known life isn’t easy. From my own tough experiences but more importantly, from hearing every day the difficult things people experience when they share them with me in counseling, I have heard some doozies. And yet, through it all, I am repeatedly awed by the strength of the human spirit to persevere. I tell people all the time that they can handle so much more than they realize. They don’t think they can, but then when it happens, they do, they survive, they make it through.
I don’t think we worried we wouldn’t survive parenting a child with Down Syndrome. We knew we would be okay. But there was so much we didn’t know, it was scary. Parenting itself is already an adventure into the Great Unknown. It’s the most rewarding and the most powerless feeling anyone could have. Add to that parenting a child with special needs and many of us could easily shut down. Health concerns, learning disability, physical disability, mental illness… Down Syndrome, Autism, Sensory Processing Disorder… it feels like there are more questions than answers sometimes.
Our experiences with Sensory Processing Disorder and then Down Syndrome turned out to make us stronger. And while we assumed that we’d have to work harder to guide our children who had “special needs”, what actually happened is that they teach us. They do better than we ever thought they would, and teach us new things every day. They exceed our expectations and those of the world around them. When I wrote my book (Living With a Rock Star and a Super Hero) my premise was that Ben thinks he is a rock star and he thinks Lucas is a super hero. But the real truth is that to me, Ben IS and rock star and I am his biggest fan, and Lucas is all of our hero, he saves us every day with his wisdom and his energy. If I had to do it all over again I wouldn’t change a thing. I am better because of it. Most days I try to remind others of their potential, and I can do this because I see it in action every day of my life.